"Then Mosy On
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Archive for August 2012

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Yea

Yea

August 14th, 2012

So blue

so blue

August 14th, 2012

Today Tuesday

today tuesday

August 14th, 2012

Ahhhhhhhh

ahhhhhhhh

Ted Talk

watch this

comment here

August 9th

today i will make stuff
art some say
garbage chant others
silence both liars and do

ingest the things that inspire
bruce springsteens keynote speech
cracked something open
reminds me y

last night i had a reading by james kellerher
who i knew nothing of
until michelle entered my life
changing my world

this is a love letter i suppose
to the light

before i start i listen to a ted talk
each one a delicious nutritious morsel
aman mojadidi
the geography of self

thank u

that is the only prayer

elton vs pnau is up first
then some joni mitchell
i will breathe it in
and see

August 3rd, 2012

took mish 2 malibu
drove to napa
stopped in big sur
heaven on earth

it was a honeymoon
before the wedding
pure bliss
we laughed loved listened

then blink – it begins
on mothers day
morning pain
that won’t let up

we wander thru the maze of medical mystery
confused – scared
mish gets even smaller
i get even bigger – sugar my solace

i wake many mornings
in a darkened room
on a roll away cot
with good n plenty stuck in my matted hair

undiagnosed – again and again
her pain grew worse
it seemed impossible
no one knew what was wrong

life changes in an instant

desmoid tumors
odd and curious beasts
strong and sneaky
a non cancer that acts cancerous

only 900 cases a year in the US
an orphan disease – beyond rare
only 3 people per million get this
michelle is one of them

she is recovering from surgery in june
getting stronger every day
we have joined the fight against this disease
raising money and awareness

we had to postpone our wedding
re scheduled for next summer
in lieu of gifts -
we ask for donations

DTRF Desmoid Tumor Research Foundation

good thoughts
wishes
prayers
all welcomed