Rosie.com

spent the weekend in philly
with some amazing families
all living with desmoid tumors
informative and emotional

i listened to 5 top doctors
deliver TED type talks
about their lifes passion
desmoid tumor research

these r smart peeps
they spoke to hundreds of patients
they brought their own slides
they worked the laser pointer

they answered questions
from worried mothers
from 20 years survivors
some with missing limbs

a community built around a rare disease
3 in a million
gathered together in hope of a cure
a connection

i met a beautiful young couple
whose 2 yr old blonde boy max
has a desmoid in his jaw
i wished for a magic wand

thank u to all who donated money
lots was raised for research
so one day
they will have a way to deal with
demon desmoids

on thursday i will be on the dr oz show
talking about my heart attack
tune in
let me know what u think

peace peeps

omg
i saw one episode 3 days ago
i am obsessed

i hope u do all u can to protect this family
there is such beauty there
self acceptance
it really is a radical show
in ways most will miss

the balance between celebrating and humiliating has to be carefully kept

can u promise me u will get a doctor to check out junes toe …
the bugs in it -
it looked pretty serious

do u have anyone helping them with money
r u paying them fairly

do something if u can
to guide them david

which i realize is not ur job
but like susan boyle
they need and deserve protection

i am fascinated with the show on so many levels

congrats its a huge hit

xxx
rosie

==========================================

i met david when i worked for OWN
he is a pretty amazing man
very smart – fair
honest even
imagine that

i like him
i like his wife
his kids r cool
he knows the best pizza place in rockland
we r nearly neighbors
a town or 2 over

he runs discovery networks
tonight they air a show called the BIG JIG
i am the creator – ish
david and i were flying to LA
he asked which shows i liked
dance moms i said without missing a beat

it was brand new then
he had not yet seen it
i did my best abby impression
he laughed

well my niece was an irish step dancer
the feis
life was ruled by the feis
do a feis dance mom show

he took out his notebook
and jotted it down

2 weeks later
i got a call and a contract
they were making it
that guy goes with his gut

we e mailed after my heart attack
the week before he sent me shark week cupcakes
remembering how my son blake
is totally into it

he asked what i thought about HCHBB
i told him i had not seen it
i don’t like toddlers and tiaras
i am old school

the documentary living dolls -
by shari cookson
said it all
about pageants

i had no interest in the series
so did not know of HBB

and then – i saw one episode
it only took one
to get it
to feel pushed and pulled

so many emotions
i knew why this show was huge

so on sept 26
i wrote the above e mail to david

even though there r many
who think it absurd
that i feel as i do
connected
to strangers
who i am happy to have been introduced to
via cable tv

i know they have turned down the offer of a new house
which came b 4 mine
it doesn’t surprise me
and makes me love them even more

peace peeps

when i moved back to new york
in 1996 – with a new born parker in tow
preparing to start a new show
i needed a publicist

i met with only one
lois smith
a legendary powerhouse
founder of PMK

i walked into her office
looked into her sky blue eyes
and had to catch my breath
she was the spitting image of my nana

we talked for hours
about life and babies and show biz
turns out she lived in the next town
we soon became fast friends

many sundays she would stop by
on her way to salon z at saks
we zip over in her suburau
and scour the sale racks

we had many sunny days on my boat
in the hudson
her husband gene telling us the history of the area
why west point is – where west point is

she loved her clients
with a fierce loyalty
and a huge open heart
that went way beyond show biz

never without her bright red coat
she could be easily spotted in any star studded crowd
she was by my side as i rode the fame roller coaster
holding my hand thru the scary parts

2 weeks ago she called
“ducks” she said – hows the ticker?
she berated me for not coming to visit on plum island
she asked about my kids

she was one of a kind
and her death feels like a dagger
although 85 is a long life
hers was not long enough

returning to the 4 seasons one night in LA
after i hosted the grammys
she opened the limo sun roof
lifted her champange glass and said

“here’s to u world”

she taught me how to live
and how to love

i am not so sure what happens
after we leave the flesh behind
but i hope she is back with marilyn
talking about old times

as nora looks on
taking notes
lois had so many stories
what a movie that would be

this death thing
is impossible to get used to
i hope my heart can withstand it
sorrow is killing me

i thought i would be breast cancer that got me
like it did my mom
heart attack ?
never worried about it

ever

heart disease kills more women than men
233,00 a year
every 20 seconds a woman has a heart attack in america
50% of deaths happen in the first hour

all of this will be discussed
tomorrow
when mish and i film DR OZ
an amazing man

the tale of r last 6 months
a desmoid tumor – a heart attack
perhaps r story
will help some

off to get a mani
with viv

ONCE is blasting
on repeat
the sun is shining
i am painting on my wall

watched so many docs
on apple tv
good god i love that thing
buy it if u can

art
there waiting for u to ingest
24 hours a day
always

i remember waiting for the sound of music
to play on tv
ONCE a year
and now this – instant everything

ONCE is beautiful
cracked my heart right open
as it grew bigger still
the bulls eye

feel this
life challenges
love death faith
breathe

the woodman’s on netflix
please watch it
and let me know
if it haunted u too

i bought this Zentangle kit
very good tool
for those wanting to doodle
but fearing they cannot

there r no mistakes in art
only small repeat patterns
that grow in significance
as they multiply

went to a wedding yesterday
with my wife
we held hands in the street
i am walking on moonbeams

if u r in love -
go see ONCE ON BROADWAY
i know tickets r expensive
but please run there

sit in a velvet seat
notice the theater ceiling
get ready to receive
full blast

otp
off 2 paint

did my first round of blood tests
things r looking up
my good cholesterol is too low
what the …

didn’t think that was possible
but apparently it is
i am at 31 and need to get to 40
i can do that

diet and exercise
use it or lose it
who u gonna serve
now or never

many things have shifted
this last month
each decision weighed
choose and then choose again

to become ur own protective presence
not easy for us humans
tend to self
breathe

i find i like alison pill
so much more
since her top free tweet
something about her smile

i knew whoever she was thinking of
would be warmed
by the image clicked open
young and in love

i never had that kind of courage

so now tending to my body
a new mountain to climb
a place to return to
pre shame

kids r back in school
2 away – 2 still here
life feels familiar again
a rhythm i know well

the parking line for school pick up
is the best place to practice calm
as i try to decrease stress
in all ways

so many have been so kind
grabbing my hand -
“i am so happy u r ok ”
warms me

thank u
thank u
thank u
xx

xxx